(Disclaimer: haven’t read the article yet, definitely going to get to it later today.)
This is kind of thing where I am so torn between philosophy and pragmatism.
- Morally, bodily autonomy is very important. Framing this as “right to repair for your own body” is a fascinating way of thinking about it, and makes a clear, ethical argument in favor or DIY medicine. And that’s on top of the fact that we shouldn’t have to rely on giant corporations for our health.
- The potential consequences of this are terrifying, not just for misinformed people, but their children as well.
On a meta note, 404media continues to be the best subscription I’ve ever paid for.
Honestly, this is something that I hadn’t actually considered before. I’m almost embarrassed, since I like to think of myself as someone who is always thinking about how my data can be misused, haha.
It’s not just about data that can currently be used unethically; there’s also the fact that someone may figure out a way in the future to use today’s data unethically. This is definitely true with something like your DNA, which is so complex that there are infinite things to learn from it. But it can be true of more simple things, too. There’s no way to predict what someone will be able to extrapolate from seemingly harmless information today.